Towards a sociology of diagnosis. The social functions of medical diagnosis in the context of the illness experience

Authors

  • Michał Skrzypek Katedra Socjologii Grup Etnicznych i Społeczeństwa Obywatelskiego, Instytut Socjologii, Wydział Nauk Społecznych, Katolicki Uniwersytet Lubelski Jana Pawła II; Samodzielna Pracownia Socjologii Medycyny, Katedra Nauk Humanistycznych, Wydział Pielęgniarstwa i Nauk o Zdrowiu, Uniwersytet Medyczny w Lublinie image/svg+xml

DOI:

https://doi.org/10.18778/0208-600X.45.04

Keywords:

medical sociology, sociology of diagnosis, sociology of illness experience, sociology of chronic illness, sociology of uncertain illness, medical diagnosis

Abstract

The subject of analysis are the social functions of medical diagnosis, taking into account the ways of how diagnosis shapes the models of the experience of chronic illness, including functional health disorders (Medically Unexplained Physical Symptoms). The theoretical framework of this analysis is phenomenological sociology and the achievements gained as a result of its application in the field of the sociology of illness experience. This analysis complements the achievements of the sociology of medical knowledge, which point to medical diagnosis as a construct emerging at the meeting point of individual experience and biological, political, economic and especially social reality. The construct is therefore the result of a number of influences going beyond medicine. The present analysis emphasizes that the application of diagnosis to a specific patient is not only a clinical act of crucial importance in medical science and art, but also a social one, which, with the growing role of patients in medical care as subjects of rights, increasingly often becomes “a product” of social interactions and negotiations taking place in their course. This act has not only clinical but also social consequences, inter alia in modeling the ways of experiencing illness, in structuralizing the patient’s contacts with the medical system, or in the virtual collectivization of illness experience. The goal of the study is to start and dynamize scientific discussion on the cognitive identity of the new branch of medical sociology: the sociology of diagnosis.

References

Balint M. (2000), The Doctor, His Patient and the Illness, Churchill Livingstone, London.

Broom D. H., Woodward R. V. (1996), Medicalisation reconsidered: toward a collaborative approach to care, „Sociology of Health and Illness”, Vol. 18, No. 3, s. 357‒378. DOI: https://doi.org/10.1111/1467-9566.ep10934730

Brown P. (2000), Naming and Framing: The Social Construction of Diagnosis and Illness, [w:] P. Brown (ed.), Perspectives in Medical Sociology, Waveland Press, Long Grove, s. 74‒103.

Brown P., Lyson M., Jenkins T. (2011), From diagnosis to social diagnosis, „Social Science and Medicine”, Vol. 73, s. 939‒943. DOI: https://doi.org/10.1016/j.socscimed.2011.05.031

Brown P., Morello-Frosch R., Zavestoski S. et al. (2011), Health Social Movements: Advancing Traditional Medical Sociology Concepts, [w:] B. A. Pescosolido, J. K. Martin, J. D. McLeod, A. Rogers (eds.), Handbook of the Sociology of Health, Illness, and Healing. A Blueprint for the 21st Century, Springer, New York, s. 117‒137. DOI: https://doi.org/10.1007/978-1-4419-7261-3_7

Bury M. (1982), Chronic Illness as Biographical Disruption, „Sociology of Health and Illness”, Vol. 4, No. 2, s. 167‒182. DOI: https://doi.org/10.1111/1467-9566.ep11339939

Clarke J. N., James S. (2003), The Radicalized Self: The Impact on the Self of the Contested Nature of the Diagnosis of Chronic Fatigue Syndrome, „Social Science and Medicine”, Vol. 57, No. 8, s. 1387‒1395. DOI: https://doi.org/10.1016/S0277-9536(02)00515-4

Cooper L. (1997), Myalgic Encephalomyelitis and the Medical Encounter, „Sociology of Health and Illness”, Vol. 19, No. 2, s. 186‒207. DOI: https://doi.org/10.1111/1467-9566.ep10934404

Davis F. (1991), Passage Through Crisis. Polio Victims and Their Families. With a New Introduction by the Author, Transaction Publishers, New Brunswick‒London.

Dumit J. (2006), Illnesses You Have to Fight to Get: Facts as Forces in Uncertain, Emergent Illnesses, „Social Science and Medicine”, Vol. 62, No. 3, s. 577‒590. DOI: https://doi.org/10.1016/j.socscimed.2005.06.018

Frank A. W. (1997), The Wounded Storyteller. Body, Illness, and Ethics, The University of Chicago Press, Chicago‒London. DOI: https://doi.org/10.7208/chicago/9780226067360.001.0001

Freidson E. (1970), Profession of Medicine. A Study of the Sociology of Applied Knowledge, Harper and Row Publishers, New York‒Hagerstown‒San Francisco‒London.

Glenton C. (2003), Chronic Back Pain Sufferers ‒ Striving for a Diagnosis, „Social Science and Medicine”, Vol. 57, s. 2243‒2252. DOI: https://doi.org/10.1016/S0277-9536(03)00130-8

Goffman E. (2005), Piętno. Rozważania o zranionej tożsamości, Gdańskie Wydawnictwo Psychologiczne, Gdańsk.

Jutel A. (2009), Sociology of Diagnosis: A Preliminary Review, „Sociology of Health and Illness”, Vol. 31, No. 2, s. 278‒299. DOI: https://doi.org/10.1111/j.1467-9566.2008.01152.x

Jutel A. (2011), Putting a Name to It. Diagnosis in Contemporary Society, The John Hopkins University Press, Baltimore.

Jutel A., Nettleton S. (2011), Towards a Sociology of Diagnosis: Reflections and Opportunities, „Social Science and Medicine”, Vol. 73, s. 793‒800. DOI: https://doi.org/10.1016/j.socscimed.2011.07.014

Keyes C. F. (1985), The Interpretive Basis for Depression, [w:] A. Kleinman, B. Good (eds.), Culture and Depression. Studies in the Anthropology and Cross-cultural Psychiatry of Affect and Disorder, University of California Press, Berkeley‒Los Angeles‒London, s. 153‒174. DOI: https://doi.org/10.1525/9780520340923-008

Mucha J. (2002), Socjologia krytyczna, [w:] Encyklopedia socjologii, t. IV, K. W. Frieske, H. Kubiak, G. Lissowski, J. Mucha, J. Szacki, M. Ziółkowski (red.), Oficyna Naukowa, Warszawa, s. 69‒72.

Nettleton S. (2006), ‘I Just Want Permission To Be Ill’: Towards a Sociology of Medically Unexplained Symptoms, „Social Science and Medicine”, Vol. 62, No. 5, s. 1167‒1178. DOI: https://doi.org/10.1016/j.socscimed.2005.07.030

Parsons T. (1966), The Social System, The Free Press, New York.

Penkala-Gawęcka D. (2008), Antropologia medyczna dzisiaj: kontynuacje, nowe nurty, perspektywy badawcze, [w:] W. Piątkowski, B. Płonka-Syroka (red.), Socjologia i antropologia medycyny w działaniu, Oficyna Wydawnicza Arboretum, Wrocław, s. 219‒241.

Scheff T. J. (1987), Negotiating Reality: Notes on Power in the Assessment of Responsibility, [w:] J. D. Stoeckle (ed.), Encounters between Patients and Doctors. An Anthology, The MIT Press, Cambridge‒London, s. 193‒213.

Schutz A. (1962), Collected Papers, [w:] The Problem of Social Reality, Vol. I, M. Natanson (ed.), Martinus Nijhoff Publishers, Hague, s. 229‒234.

Sim J., Madden S. (2008), Illness Experience in Fibromyalgia Syndrome: A Methasynthesis Qualitative Studies, „Social Science and Medicine”, Vol. 67, s. 57‒67. DOI: https://doi.org/10.1016/j.socscimed.2008.03.003

Skrzypek M. (2011), Perspektywa chorego w socjologii choroby przewlekłej. Ujęcia teoretyczne, ich ewolucja i recepcja, Wydawnictwo KUL, Lublin.

Skrzypek M. (2012a), Geneza i ewolucja podstawowych kategorii analitycznych socjologii medycyny, „Medycyna Ogólna i Nauki o Zdrowiu”, vol. 18, nr 4, s. 371‒378.

Skrzypek M. (2012b), Medycyna w polu badań socjologii choroby, zdrowia i medycyny w kontekście niemedykocentrycznej orientacji badawczej subdyscypliny, „Przegląd Socjologiczny”, vol. LXI, nr 2, s. 155‒176.

Stewart D. C., Sullivan T. J. (1994), Illness Behaviour and the Sick Role in Chronic Disease: The Case of Multiple Sclerosis, [w:] H. D. Schwartz (ed.), Dominant Issues in Medical Sociology, McGraw‒Hill, New York, s. 16‒27.

Szacki J. (2002), Historia myśli socjologicznej. Wydanie nowe, Wydawnictwo Naukowe PWN, Warszawa.

Taylor D., Bury M. (2007), Chronic Illness, Expert Patients and Care Transition, „Sociology of Health and Illness”, Vol. 29, No. 1, s. 27‒45. DOI: https://doi.org/10.1111/j.1467-9566.2007.00516.x

Twaddle A. C., Hessler R. M. (1977), A Sociology of Health, The C.V. Mosby, Saint Louis.

Uramowska-Żyto B. (1981), Diagnoza medyczna, „Studia Socjologiczne”, vol. 82, nr 3, s. 145‒157.

Uramowska-Żyto B. (1989), Socjologia fenomenologiczna wobec problemów zdrowia i choroby, [w:] Socjologia zdrowia i medycyny. Materiały z konwersatorium Sekcji Socjologii Medycyny PTS i Zakładu Socjologii Zdrowia i Medycyny IFiS PAN prowadzonego przez Magdalenę Sokołowską i Annę Titkow (1986‒88), Sekcja Socjologii Medycyny PTS, IFiS PAN, Warszawa, s. 77‒104.

Ware N. C. (1992), Suffering and the Social Construction of Illness: The Delegitimation of Illness Experience in Chronic Fatigue Syndrome, „Medical Anthropology Quarterly”, Vol. 6, No. 4, s. 347‒361. DOI: https://doi.org/10.1525/maq.1992.6.4.02a00030

Whitehead L. C. (2006), Quest, Chaos and Restitution: Living with Chronic Fatigue Syndrome / Myalgic Encephalomyelitis, „Social Science and Medicine”, Vol. 62, s. 2236‒2245. DOI: https://doi.org/10.1016/j.socscimed.2005.09.008

Zavestoski S., Brown P., McCormick S. et al. (2004), Patient Activism and the Struggle for Diagnosis: Gulf War Illnesses and Other Medically Unexplained Physical Symptoms in the US, „Social Science and Medicine”, Vol. 58, No. 1, s. 161‒175. DOI: https://doi.org/10.1016/S0277-9536(03)00157-6

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Published

2013-06-30

How to Cite

Skrzypek, Michał. 2013. “Towards a Sociology of Diagnosis. The Social Functions of Medical Diagnosis in the Context of the Illness Experience”. Acta Universitatis Lodziensis. Folia Sociologica, no. 45 (June): 51-64. https://doi.org/10.18778/0208-600X.45.04.